Resources Available to Your Family


When we first learned of Joey's condition we were unaware of the help he was entitled to and the assistance we could get. I've put together a list of resources we utilized to help us with everyday life, decision making and support. 

Ohtahara Syndrome

​

You'll find information about Ohtahara Syndrome, seizure recognition and the testing involved. 

Helpful links and suggestions from Joey's mommy and daddy

SUPPORT

Meet other families who've had to face epilepsy how they found support.